Sound and Vision Research Involvement Opportunity

Involvement Opportunity

Researchers are interested in comparing the experience of hallucinations in different conditions (parkinson’s and schizophrenia) through art. They have been using diagnosis language for this reason but they would be interested in discussing whether a broader terminology, such as “psychosis” and “dementia” would be more appropriate.

Project title:

Sound and Vision: A collaboration between service-users, artists and the public to explore the lived experience of hallucinations

Project description:

Hallucinations occur in a surprisingly wide range of medical conditions, and often among the general population. But what is it like to experience hallucinations? And is the experience of hallucinations the same for patients with different conditions, or no medical diagnosis? This project will pair  people who experience hallucinations as one of their symptoms and local artists who will interpret these experiences to produce paintings that express their content and feelings. Patients with diagnoses of schizophrenia and Parkinson’s disease will be invited to take part in participating NHS clinics, to capture and compare a wide range of hallucinatory experiences. We will then exhibit these paintings with the hope of reducing some of the stigma around mental health by encouraging the general public to tell us about their own experiences.

Team:

Colleen Rollins (Department of Psychiatry, University of Cambridge) is a Gates Cambridge Scholar researching the experience of hallucinations; She has links to artist and service-user networks alike, having previously coordinated the Creative Reactions art exhibition for Pint of Science (May 2018), and attends Conversations with Experts by Experience (CEbE), a program that offers researchers to learn first-hand from teachers who are experts by lived experience with mental health conditions;

John Suckling, (Department of Psychiatry, University of Cambridge & Cambridgeshire and Peterborough NHS Foundation Trust) has over 30 years of experience in medical imaging, and has published widely on the biological origins of psychiatric and neurological disorders;

Emilio Fernandez-Egea, (Department of Psychiatry, University of Cambridge & Cambridgeshire and Peterborough NHS Foundation Trust), is the lead clinician of Clozapine Clinic from where service-users with psychiatric disorders will be recruited.

Involvement:

We are looking for 8-10 people with relevant experience (as a service user or carer) and interest on the topic. We are planning to set up two Lived Experience Advisory Groups of people who have personal experience of living with diagnosis of schizophrenia or parkinson’s disease or are carers of people with these diagnoses.

Time commitment:

The first meeting will most probably take place on 10th or 11th September 2019, 10.30-12.30.

Payment:

Members will receive £10 per hour for attending the meetings. Travel expenses will be paid at 56 p per mile or public transport rates. All claims must be accompanied by relevant receipts. Please note, this income may have implications for those claiming benefits. All income must be declared to the Inland Revenue.

Contact:

If you are interested in this project, please send your expression of interest to Iliana Rokkou (iliana.rokkou@cpft.nhs.uk).